She was a grunt worker in a factory and now holds the title of first-ever international director of the CHARGE Syndrome Foundation.
Lisa Weir, the only Canadian sitting on the foundation’s board of director’s talks about how she got started with the foundation, why she felt it was important to bring a Canadian influence, starting the first CHARGE group in Canada and the reason Canadians aren’t informed enough about CHARGE.
Her duties for the CHARGE Syndrome Foundation are secretary and chairperson of the education committee.
All the while chronicling the day-to-day happenings of her nine-year-old daughter, Kennedy who has CHARGE syndrome in “The Adventure’s of Kennedy” blog.
Listen to Lisa’s story…